Heather went in for surgery this morning and is doing very well. It was a scheduled, voluntary surgery to implant a hockey puck-sized pump into her abdomen that will deliver baclofen medicine directly into her spinal fluid. At the trial, the medicine helped tremendously with her spasticity (muscle stiffness), and having this pump should help her muscles relax enough to learn to walk. After undergoing anesthesia, the hospitals in Phoenix always kept her overnight as a matter of course, and we expect Huntsville Hospital to do the same. However, they took some special precautions because they know she reacts poorly to anesthesia, so she is doing much better than she normally does after surgery, and is happy and talkative. Of course, it not being the usual emergency surgery due to brain swelling also aided her recovery.
4 comments:
We are so glad to hear she is doing well after the surgery. Give her a hug from us! Love, Grandma Diane and Grandpa Bill :-)
So brave, especially for such a little girl! HUGS
Charla thought my post made it sound like she was completely recovered, so here is a clarification. Heather is obviously in a lot of pain when she moves, but she is moving around anyway, albeit gingerly. She had a fever that the doctors believe was a reaction to the foreign object in her body, but it broke last night. If you make her laugh, she goes, "Ha ha ha ha ha...ohhh." Her stomach looks like a cartoon character who just ate a hamburger, with a round bulge showing, but that will be less noticeable when she gets bigger.
As opposed to our other kids who cry at the drop of a hat, Heather rarely complains, but that actually makes it harder for us to make sure she's okay. Her spasticity is actually worse because of the surgery, but should start improving as soon as she is fully recovered.
Good luck Heather! You are such a trooper.
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